11-year-old Adalia Rose documents her everyday life with Hutchinson-Gilford Progeria Syndrome on her YouTube channel... along with her make-up tutorials and dance videos
DESPITE suffering from an extremely rare ageing condition, self-confessed "diva" and YouTube star Adalia Rose has racked up more than 170 MILLION views for her bubbly personality and inspiring content.
The 11-year-old internet sensation was diagnosed with Hutchinson-Gilford progeria syndrome (a genetic condition which affects less than 500 children around the world) as a baby... but has not let it stop her from documenting her fun-filled life online.
Famous for her beauty tutorials and vlogs, the American pre-teen often shares her day-to-day experience with the rare condition with her 1.5 million YouTube subscribers.
Along with rapid premature ageing, Adalia has also suffered from hair loss, lack of body fat, prominent veins, a high pitched voice and severe stiffness in her joints.
First diagnosed at just three months old, Adalia's mother Natalia Pallante, 29, said doctors first noticed something was wrong within the first four weeks of the little girl's life.
Concerned about Adalia's lack of "growth", the then single mum also recalls how the "skin on her tummy was really tight and just different looking."
Two months later, Natalia was left devastated by the life-changing diagnosis and remembers how "it was just her and I and I honestly felt lost."
It was also around this time that Adalia "started losing her hair and her little veins started showing up more and her skin started thinning out a lot more."
Source: Medicine Net
Sufferers of this extremely rare condition (caused by a abnormal gene protein) are also at an increased risk of dwarfism.
However in the 11 years since that life-changing moment, Adalia and her family (who are based in Texas) instead choose to live "day by day" and don't discuss the condition's 13 year life expectancy.
Now an older sister to three little brothers, Adalia styles out her lack of natural hair with her signature colourful wigs.
And like any other social media obsessed pre-teen, Adalia and her mother first created her channel in 2012 for "giggles"... and have been amazed by the response they're received.
From colourful make-up looks to videos showcasing her singing, Adalia has acquired a devoted fanbase of 1.5 million subscribers who are always telling her that she is "so cute" and "so beautiful".
What's more, Adalia's channel has racked up over 170 MILLION views in the past six years with her most popular videos being her dance routines and make-up tutorials with her mum.
Reflecting on her online fame, Adalia said: "I guess I am a diva because I always get what I want!"
Natalia also agrees and describes how her only daughter has both her parents "wrapped around her little finger."
Adalia's stepfather Ryan, 31, said: "Having a social media superstar 11-year-old, it's crazy, especially when we are out in public - you know, a lot of people recognise her."
And according to the online star's mother, Adalia is also constantly complimented on her videos and praised for "how she's inspirational and how she doesn't let anything stop her."
Finding strength in her loyal fanbase, it'll come as no surprise that Adalia "loves those comments" on her videos.
For even more real life stories, this inspiring sister has raised £96k for sick kids while her son fought for his life.
And Rachel Bland's heartbreaking 'guide to life' for her son... 'don't take things to heart, laugh till you're sick and be kind.'
Plus this is the inspirational 11-year-old with Down's Syndrome who is starring in the new River Island ads.
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