Cornelia de-Lange Syndrome- Manasvini Hari

I know to Eat!!! Hurray!!!
By Harish Ravishankar

Another milestone to share!!!

Over the last few days, we are seeing Manasvini (5+ years now) trying to pick crispy food items and eating on her own., We waited, for a couple of weeks, to shoot this moment and be sure that she’s actually reaching out to have them!!!
Every special needs child grows and develops at a different pace, we have to be patient and support the child’s development with required therapies when necessary!
Let’s love, unite and support for a cause!
#TeamManasvini #SpecialNeedsChild #CdLS #CdLSAwareness #CdLSFoundation #RareDiseases #smallbutmighty #TeamCdLS #Autism #LetsUniteForCause #CdLSStrong #CdLSWorldFederation #CdLSIndia #CdLSFoundationUK&Ireland #CdLSCdn #CanadianCdLSFoundation #ORDI #DontJudge #AwarenessIsTheKey #CdLSAngels #WeAreRare #ExtendedFamily

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Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.